In brief
Emma Heming Willis has opened up about her husband Bruce Willis's declining cognitive health due to frontotemporal dementia. In an interview, she described his overall good physical health while noting the impact of the disease on his language and communication. As an upcoming author, Emma aims to support other caregivers through her personal experiences.
Emma Heming Willis, the wife of retired US actor Bruce Willis, has spoken for the first time publicly about how his brain is now failing him and his language is going.
The Die Hard star, 70, was diagnosed with frontotemporal dementia more than three years ago.
Bruce is still very mobile. Bruce is in really great health overall, you know, she told ABC News via Good Morning America on Tuesday. It's just his brain that is failing him.
The author of an upcoming book about her family's experience with dementia, Heming Willis also advocated for fellow carers. The language is going, and, you know, we've learned to adapt, she added. And we have a way of communicating with him, which is just a... different way.
The Willis family revealed in 2023 that the star had been diagnosed with frontotemporal dementia, which, according to the NHS website, is an uncommon type of dementia that causes problems with behaviour and language.
Model and entrepreneur Heming Willis said she thought at first she had to help her husband all by herself, which led to sleepless nights and withdrawal from social life. She said she hopes her new book, titled Unexpected Journey: Finding Strength, Hope, and Yourself on the Caregiving Path, can serve as a roadmap and guide for other carers whose lives may be similarly affected by dementia.
The family - including the couple's two young daughters, and Bruce's other three daughters with former partner, actress Demi Moore - still see flashes of his true personality, Heming Willis noted, as well as the twinkle in his eye.
Not days, but we get moments, she said. It's his laugh, right? He has such a hearty laugh. And sometimes you'll see that twinkle in his eye, or that smirk, and I just get transported.
She continued, And it's just hard to see, because as quickly as those moments appear, then it goes. It's hard. But I'm grateful. I'm grateful that my husband is still very much here.
She was speaking ahead of ABC's special, Emma & Bruce Willis: The Unexpected Journey, which airs in the US on Tuesday at 20:00 BST. It will be made available to stream the following day on Disney+ and Hulu.
